What is Duchenne Muscular Dystrophy?

Duchenne Muscular Dystrophy (DMD) is the most common and lethal genetic disorder for children. DMD causes young boys to experience progressive muscle weakness, as their muscle cells “explode” and die . . . they don’t regenerate.

•Boys are typically diagnosed before the age of five
•Muscles swell and joints become restricted, causing difficulty in walking before age 10
•Most will need a wheelchair between the ages of 10 and 12
•The simplest of tasks, such as holding a fork or turning over in bed, will become very difficult
•In the later stages, heart and breathing-related muscles weaken and eventually fail
•THERE IS NO CURE … BUT THERE IS FINALLY HOPE!

Duchenne Muscular Dystrophy affects one in every 3,500 boys worldwide. An estimated 20,000 babies are born with this disorder every year. DMD knows no boundaries and crosses all cultures.

Approximately 60% of the DMD cases are hereditary. However, an alarmingly high percentage (40%) occurs because of a spontaneous mutation at conception.

IT CAN HAPPEN IN ANY FAMILY!

About CureDuchenne™

CureDuchenne™ was founded in October 2003, by Debra and Paul Miller when their only son was diagnosed with DMD. The Miller family had no previous history of the disease. They discovered that no organization specifically targeted research and without that focus, a cure would not come in their son’s lifetime. Their vision was clear and became the name of their nonprofit corporation, “CureDuchenne™” Muscular Dystrophy.

Vision, Mission, and Goals of CureDuchenne™

•Our Vision is our name: CureDuchenne™
•Our Mission is to save THIS generation of boys with Duchenne Muscular Dystrophy
•Our Major Goals are:
   -Focus donations on research dedicated to the treatment and cure of Duchenne, and
   -Find the cure and be out of business within 10 years!

What Sets CureDuchenne™ Apart…Our Team of Advisors

Our board and advisors allow us to identify the most promising research, conduct due diligence on the researchers, and provide them with ongoing funding and technical assistance. Board members and advisors are pro bono. Detailed information pertaining to the expertise of our Advisors is available on our web site: www.cureduchenne.org.

Not-For-Profit Status

CureDuchenne™ is a 501(c)(3) nonprofit public benefit corporation (EIN 20-0299958, with public charity status 170(b) (1) (A) (vi), registered with the State of California Franchise Tax Board, Exempt Organizations, Business Entities Section (Entity ID #: 2560516).

To Learn More, Watch Our Video

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CureDuchenne is a 501(c)(3) Non-Profit Organization –

Fed. Tax ID #: 20-0299958